Friday, April 19, 2013

https://www.facebook.com/KatiesChiariChronicles



http://www.giveforward.com/fundraiser/7882/hikeforkatiechiariawareness

Please visit my Facebook page: Katie's Chiari Chronicles
for a link and details of the Hike on May 25, 2013, in AZ!

I have some amazing people in my life!  Truly a blessing!

My BFF and "sister" has organized a hike in AZ to raise Chiari and Syringomyelia awareness in my honor.  So many people suffer from this silently, as it is still fairly rare and many people have never heard those words.

There is also a link to the fundraising page she has started.  The proceeds from the fundraiser will be donated to Chiari and Syringomyelia research, as my medical expenses are covered by my insurance.  Please feel free to share the links with anyone and everyone! Let's bring some light on this condition!

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